information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.
– Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive
– Receiving care at a clinical center that uses Epic as its EHR.
– Able and willing to provide informed consent (or informed consent obtainable from a
– Inability to understand English and/or Spanish
- Stanford University, Palo Alto, California, United States, 94304
- California Pacific Medical Center, San Francisco, California, United States, 94115