Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
Sponsor:
University of Miami
Brief Summary:
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.
Criteria
Inclusion Criteria:
– Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive
muscular atrophy).
– Receiving care at a clinical center that uses Epic as its EHR.
– Able and willing to provide informed consent (or informed consent obtainable from a
designated proxy).
Exclusion Criteria:
– Inability to understand English and/or Spanish
Locations
- Stanford University, Palo Alto, California, United States, 94304
- California Pacific Medical Center, San Francisco, California, United States, 94115
