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Clinical Procedures to Support Research in ALS (CAPTURE-ALS)


Brief Summary:

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.


Inclusion Criteria:

– Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive
muscular atrophy).

– Receiving care at a clinical center that uses Epic as its EHR.

– Able and willing to provide informed consent (or informed consent obtainable from a
designated proxy).

Exclusion Criteria:

– Inability to understand English and/or Spanish


  • Stanford University, Palo Alto, California, United States, 94304
  • California Pacific Medical Center, San Francisco, California, United States, 94115
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